samedi 24 juin 2017
A Mom Shared Her Son's Medical Bill to Show How the New Health Care Bill Could Jeopardize His Life
We've had two of those already this year. http://pic.twitter.com/zKhw4StSBx
- Ali (@aliranger29) June 24, 2017
It can be easy to get lost in the political discussions around the new health care bill, but one mom is bringing attention back to whose lives could be affected by it. Mom Ali Chandra started with her own son, Ethan Vikash.
"It seems fitting that, with the #TrumpCare debate raging, I got this bill in the mail today from Ethan's most recent open heart surgery," Twitter user aliranger29 wrote along with a photo of the costly medical bill. "I'll save you some math; without insurance we would owe $231,115 for 10 hours in the OR, 1 week in the CICU and 1 week on the cardiac floor."
The loving mom went on to share how expensive it is for Ethan to survive with his heart condition when you factor in the amount of surgeries and medication he has to take. "We also regularly see a local cardiologist, and electrophysiologist for his pacemaker, a pediatrician, & immunology for his polysplenia," she wrote. "He takes 5 different prescription medications multiple times a day. All of this adds up. None of this would be possible without insurance."
Read on to see her entire heart crushing plea to Trump and the Republican party to reconsider their new health care bill, specifically reinstating a lifetime cap on benefits that could be detrimental to little Ethan's health.
It seems fitting that, with the #TrumpCare debate raging, I got this bill in the mail today from Ethan's most recent open heart surgery. http://pic.twitter.com/pyUE2UxbWW
- Ali (@aliranger29) June 24, 2017
And I want you to go look at that number again. Nearly a quarter million dollars for one surgery. Reinstate lifetime caps and he's out.
- Ali (@aliranger29) June 24, 2017
He blew past the million dollar mark long ago; I haven't even mentioned the ER trips for sepsis workups every time his temp goes above 100.4
- Ali (@aliranger29) June 24, 2017
Or the surprise admissions that sometimes follow those ER visits when his body just isn't strong enough to fight a common virus at home.
- Ali (@aliranger29) June 24, 2017
We've had two of those already this year. http://pic.twitter.com/zKhw4StSBx
- Ali (@aliranger29) June 24, 2017
As long as we have him with us (and I hope with everything in me that it's forever) we will need to pay for expensive medical care.
- Ali (@aliranger29) June 24, 2017
A lifetime cap on benefits is the same as saying, "Sorry, you're not worth keeping alive anymore. You're just too expensive."
- Ali (@aliranger29) June 24, 2017
Tell that to the boy who just tucked a sick firefly into bed with a leaf blanket and told me to keep the light on so he wouldn't be scared. http://pic.twitter.com/SAwsdHISPi
- Ali (@aliranger29) June 24, 2017
Tell that to the boy who picks me bouquets of sticks instead of flowers because he loves them better so he's sure I will too. http://pic.twitter.com/Zu987SCGTK
- Ali (@aliranger29) June 24, 2017
Tell that to the boy who wraps his warm arms around my neck and snuggles close after a nap. http://pic.twitter.com/zznY4S7QtM
- Ali (@aliranger29) June 24, 2017
Look my son in the eyes and tell him that he's fought so hard to be here but sorry, you're just not worth it anymore. I dare you. http://pic.twitter.com/IgdQOounyB
- Ali (@aliranger29) June 24, 2017
I don't even know how to end this thread, how to keep typing through my tears. His life is infinitely precious. That's why we fight so hard. http://pic.twitter.com/7vVPtvW1pE
- Ali (@aliranger29) June 24, 2017
And now this bill wants to take all that and throw it away for the sake of tax cuts for people who don't even need them.
- Ali (@aliranger29) June 24, 2017
If you call yourselves pro-life, you need to fight for life from beginning to end. That's what Ethan's doing, what we're doing. Join us.
- Ali (@aliranger29) June 24, 2017






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